Anyone know anything about Hinman’s bladder in children?

This is where I am asking for your help, wonderful blogger/internet community. Here’s why:

My husband’s cousin has a little boy called Quentin who is 7 years old. He is very poorly at the moment and she has reached out to see if anyone can help their family with advice or support (as well as prayers).

Quentin has been diagnosed with something called Hinman’s Bladder which is a “non-neurogenic neurogenic bladder.” Basically, a bladder that behaves as though there is a neurological issue but there is not one. He is voiding against a tremendous amount of pressure which is causing scarring in his bladder and pressure on his kidney and ureter (kidney is enlarged & getting worse). The doctor is not exactly sure why this is happening (there is nothing obviously wrong with his system and yet his symptoms continue to worsen). In an effort to save his kidney, they are recommending intermittent catheterization (where they cath him off and on, every 3 hrs) for a few years, possibly life.

She needs real feedback, thoughts, experiences,recommendations to other urologists, recommendations to online support groups. She has had a second opinion but she wants to get as much information as possible.

As you would, if it were your own child. Does anyone out there know anything about this or where she might find support or information (apart from just googling it..)?

Really appreciate anything you can do to help

x

Advertisements
This entry was posted in motherhood, parenting and tagged . Bookmark the permalink.

3 Responses to Anyone know anything about Hinman’s bladder in children?

  1. I wish I could offer assistance – but what a wonderful to call out. I hope that she and you and Quentin find the answers you are looking for. Thoughts with you. x

  2. londonmum says:

    Thank you, as you can imagine lots of friends and family are trying to help out in any way possible. x

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s